Patient stories

Jack’s Story

How do you sum up 2 years of medical appointments, learning how to be parents, and discovering your child has a life limiting ultra-rare diagnosis? Every time I sit down to tell our story, I struggle with the amount of life we’ve lived in 2 years time. 2 years has gone by in the blink […]

The Story of Elijah’s Journey

The story of Elijah’s journey is an incredible one. It all started with a phone call from a friend in the fall of 2022. She was searching for nursing services for a child that needed to be placed in foster care. Since Michael and I had closed our fostering license, I wasn’t able to immediately […]

Lennon’s Story

Lennon was born in 2014. He was a healthy baby, weighing 9lbs and 22”long. There were no complications to his natural, unmedicated delivery.  He was a perfect infant that didn’t even cry a lot. He was developing normally up to 3-4 months and mastered rolling over well.  But, while most babies at 6 months are […]